After weeks of digging for the reason I have a mental illness added to my chart; and I think we came to a solution.
Let me just clarify before I continue, I am still NOT going back to Cabinet Peaks Medical Center’s emergency room if I am conscious and coherent (and probably incoherent too).
Anywhoodles, I called and talked to the same guy, we’ll still call him George still. I explained that I had filed a complaint against Dr N before and I was still having an issue with him. He asked what had happened and I gave a quick run down of what happened before and the lack of a response that I got as a “resolution”. Since I can’t find it posted on my blog, I will give you all a quick run down. Ready?
The FUBAR Situation
On 23 March 2015 I went to the emergency room for seizures that would start, stop, and then come back within minutes. I was hesitant to go to the ER because of stories I have heard about partial seizures being non-treated here. But after calling Nurse First and still feeling very off, I went into the ER.
I saw Dr N and I it was like being in the Twilight Zone. He refused to hear what I was saying, they ignored the low O2 alarm that occasionally went off because my oxygen would drop down for a few seconds then come back up (lowest my son saw was 50-something and the lowest I saw was 67), and then he checked to see how kidney function was doing.
So, I don’t know how he connected kidney function with seizures… I wouldn’t have thought of checking that. But he did and my kidneys are fine. Not that I thought there was an issue. He came in at one point and mentioned my “dissociating” but I wasn’t dissociating! It was like, no matter what I said he would not hear what I was saying. He was so stuck on “I don’t understand these symptoms you are having” that he could not hear me say, “I AM HAVING SEIZURES THAT KEEP COMING BACK!” Even in my chart he put that I came in “for an unusual sensation that is hard to describe.” WTF? I am pretty sure this guy is either on drugs or perma-fried because it was completely surreal trying to get him to listen. It was like talking to someone about cooking who was only interested in discussing auto mechanics.
And when I snapped and said “I am having seizures” again and he said “well, I don’t know how to treat those.” WTF? How are you an emergency room doctor and you don’t know how to treat seizures? How? That should be like emergency room knowledge 101.
He went back to bed (charted) and the nurses released me because I can sit at home and be ignored just as well as I can be ignored sitting in the hospital. I do need to throw in here that Nurse J (the guy) was great and Nurse J (the woman) was the most attentive I have ever seen a nurse be at this hospital. In hindsight, I was impressed. During the visit though, I felt so off and randomly out of it that I could barely think (or read… how embarrassing. I swear Ms Nurse J, I can read better than that!)
The Next Day: All Hell Breaks Loose
As I was resting the next day, I get a phone call. It was Dr N calling to tell me he couldn’t figure out what my symptoms were from. I was a little blown away about the call because he wasn’t calling to see if I was okay, I would have been fine with that. I have had other doctors call to make sure I was okay. I am totally okay with them making sure I didn’t go home and immediately die. But he wasn’t calling to check on me at all. He was calling to tell me he didn’t know what those symptoms were, oh and he called my doctors and told them I am not taking my medication (when I was) and had them change my medication to something they all agreed I should be on (that I am against for religious reasons). I was so fucking livid.
Then he tries to set up an EEG and called me about that. He was like “I was going to have them schedule you for today but they had two openings (or maybe it was one?) and they said you would have to call.” WTF? So now you make my appointments for me too? Oh hell no! We aren’t doing this. You are not my health care advocate. You couldn’t even treat me for seizures and now you take over my health care?
And then he calls my psychologist and tells her I wasn’t taking my medication and how he just didn’t understand what was going on with me and on and on.
I finally went to the hospital and filed a complaint after I finally lost it and snapped at my CMA on the phone. I am so SO sorry T*. I still can’t have my house phone ring without going into a full blown panic attack. The thought of the hospital makes me so mad.
And now to the bullshit
After that complaint, I got the lamest letter that says, basically… paraphrasing here… “We’re sorry for your shitty experience but he doesn’t practice retaliation. He feels really bad about it though.” Out of the whole thing that is what they got? Really? No reprimand? At the least a little write up with a “You can’t act like a patient’s advocate and lie to their doctor” or anything like that? … Fine. Permanently lost me as a patient.
Then this happened. Read about it here. I mean, you couldn’t have asked for a worse experience. Turns out, I linked it back to Dr N. He diagnosed me with a mental illness without telling me or my psychologist or my doctor or anyone for that matter.
And back to the phone call
So I tell George that we tracked it back to Dr N. We had to audit my damned chart in order to find it but, three weeks later, after digging through charts in two hospitals, a clinic, and a specialist office… after having so many searching with me that they probably thought I really was crazy, we found it. He added it on the 24th of March at 0532. They told me that to have it removed, I would have to talk to Dr N about it.
Not wanting to encourage him to harass me or call my house or have any other way of wrecking havoc on my life, I decided to call “George” and explain it to him. He said he wasn’t sure if he was working that day or not. Wait. What? You are the head of the emergency department and you don’t know who is working? Well… okay…
I gave him the run down of what happened. He tried to defend Dr N. So I kept explaining that this is causing issues with my care with other doctors and I was told to talk to Dr N and I do not want to and asked if he would talk to him. He tried to defend him again and then started saying “He will probably say that he really thinks you have this.” or something to that effect. He even had the balls to tell me that Dr N doesn’t HAVE to tell anyone that he diagnosed me with that. (BULLSHIT! It is my patient’s right to know my diagnosis and not have to fucking spend weeks digging through records to find out about it.)
And that is when I decided to screw being nice and lay it out on the line for him, being totally real…
I told him, “Okay, look! I am about to call the state on you, your hospital, the doctor and everyone involved. I don’t care what you THINK he might say. I want to know WHY he diagnosed me with a mental illness when I don’t even meet the criteria for it.” or something to that affect. I am pretty sure I cussed at that point because I was quite pissed.
I didn’t call asking for someone to be Dr N’s right hand man and stick up for him. I wanted answers and they weren’t being given to me. At this point, I don’t give a rats ass what George thinks, I want to know why Dr N diagnosed me. Period. And why he didn’t tell anyone about the diagnosis. Period. That is what I want to know. I don’t want to hear excuses. I want answers.
So he says he’ll get right on that and will call me right back.
Another lame excuse, or “Do I look stupid to you?”
He calls me back and says that Dr N did not enter it into my chart. The EHR auto-populated my chart with that diagnosis and it happened to other people too. He then said he removed it from my chart or record, I can’t remember the wording. And was so sorry that happened. I call bullshit.
So I explained that while that was nice and all, it doesn’t solve my issue with my specialists who now think I am malingering because I have a “mental illness”. He said he would call them and explain what happened. I got the number and called him back with that.
He then calls again and said that MB wasn’t in the office but he would be back Monday. Has a sticky note at eye level and all and will make sure it is done. And then he concluded with, “I just want you to know we are taking this very very seriously.” Well it’s about damned time.
So I told him Thank you and that I appreciated that, because I really do.
And now, I will be checking records in about a week. Let me find that anywhere in my records and I will be contacting the state and possibly a lawyer.
Lesson learned. NEVER EVER go to Cabinet Peaks Medical Center’s Emergency Room. They do not respect you enough to tell you a diagnosis which is your RIGHT to know and they defend retaliatory doctors. That is my opinion right there.
What else would they not tell me?
And the wait begins.
But I am still angry because it negatively effected my health care with other doctors so far. One misdiagnosis, even just for retaliation, means I am now stigmatized.