Appointment Today

I have an appointment later today with my neurologist. I am excited about this because this is the longest I have gone without a seizure.

Today was a chill day. I hurt too bad to continue moving. I slept most of the day. Probably has part to do with the low calories or maybe the shitty diet? Or could be because I sometimes can’t stay awake.

I also think it has to do with the way I am eating. In order to get enough calories each day I am eating like crap. 

So, starting tomorrow, I am going to eat how I want to eat and not worry so much about calories.

  • More water
  • Healthier food
  • Stop worrying about calories

If the doctors are that worried about my diet, they can come to my house and fix my meals… or, I dunno, listen to me and figure out why I have no appetite.

I will update later about the appointment.

The Sleep Study Update…

Sorry I haven’t updated about the sleep study yet. Staying awake so long actually threw me off my schedule pretty bad. I keep thinking it is Wednesday because I lost a day somewhere. I’ll pick up on Wordless Wednesday next week.

Anyway, I did get to do the sleep study this time. When I got there, I had a one hour nap (maybe) in 28 hours somewhere in the afternoon. I couldn’t stay awake anymore. I thought I would sleep well but by the time I got to the hospital, I was wide awake and wired for sound. Continue reading

Mailbag! Fatigue, Sleep, and AWESOME!

What? Cabinet Peaks Medical Center gets a good review? Even though my appointment was cancelled? Am I okay? YOU BET! I even have a little award for them at the end of the post.

Continue reading

View from Cabinet Peaks Medical Center


I am getting a sleep study tonight. I was enjoying the view and thought I would snap a pic to share.

This is the view from Cabinet Peaks Medical Center Chemotherapy Center. The sleep lab borrows it for their sleep studies.


And the bed looks comfy… and has a massage feature and seems comfy as heck.

Woah! Sleeping Too Much! Where Did The Time Go?

Holy crap! Where did my time go? I swear I slept most of August. I think it’s mostly because of the heat. I got hot and then I start itching. Once the itching starts, I start to feel like my skin is burning… like someone poured acid over my skin. Then I get cooled down and I am just EXHAUSTED! I don’t mean “a little tired but coffee will keep me going.” I mean “Night ya’ll! See you when I wake up which will probably be two days from now!”

I spoke to the doctor about it. She is still new to me so she is still learning about me. She mentioned my medicines all can cause “drowsiness”, so I may just be tired. When she thinks of “tired” she thinks I am slogging along, drinking extra coffee, propping my eyelids open with toothpicks, and moving slowly through the house getting things done.

She pictures this…


I got this pic at
I found this pic here.


But I am actually functioning more like this…

My son and our kitten sleeping.
My son and our kitten sleeping.


I started logging my sleep on my android phone using the sleepbot app to better explain this to my doctor. First, I have done this sleep thing for years, before moving to Montana, before sleep apnea, before all the medications, before anything drastic happened in my life. I’ve done this since I was 16 years old. Yep, I have done this for 23 years. I happened to get mono from my boyfriend. My mom knew something was wrong when she couldn’t wake me and keep me conscious. I slept for a week… or so. I don’t remember. It slowly got better and I went from 23 hours of sleep a day (not kidding) to a more normal sleep cycle of 10 hours sleep a day.

Well, I told the boys to not wake me during the last cycle and explained I was trying to document the erratic sleep cycles I have. So, My oldest son (who is an adult) took over and I just logged sleep. Here are some of the more impressive ones from my sleep log…

13 August: 14.4 hours of sleep.

14 August: 18.4 hours of sleep.

15 August: 14.1 hours of sleep.

Brace yourself…

16 August: 23.2 hours of sleep.

17 August: 15.1 hours

18 August: 3 hours. Yes, that is three. I am not missing a one.

19 August: No sleep

20 August: 25.8 hours asleep. TWENTY-FIVE!

21 August: 11.7 hours of sleep… not counting the 1.8 from the day before.

22 August: No Sleep.

23 August: 20.1 hours of sleep

24 August: 14 hours of sleep

25 August (my birthday): 7.1 hours of sleep.

It was that week of my birthday where I started coming out of the sleeping beauty phase and now I am sleeping more normal amounts of time again. Usually my sleep is between seven and ten hours. On days I take all my medication, it could be a 12 or 14 hour sleep day. Even without medicines, this has been my life for years. But the roller coaster sleeps that I get, it could be no sleep to three or four days of sleep. Although, I do set alarms to try to wake me. That doesn’t work though. AND I am a moody, starving, irritable person when I am awake. I try really hard to not be mean but I just can’t help it.

BUT, I don’t have chronic fatigue… says a long string of doctors I have gone to throughout the years.

This doctor though, believes I have Fibromyalgia. All of my symptoms suggest Fibromyalgia. Although, the sleeping beauty roller coaster ride I go through is a touch extreme. She is sending me to a Rheumatologist to make sure we didn’t miss anything. I like this doctor!

So, now that I am functioning more and awake, I will be updating more. I’ll try to remember to post if I am heading into a cycle so you guys don’t think I just fell off the planet. Sorry about that, Java.

Positive Post: Good Sleep

I was hurting so bad the last few days that I could barely function. Today I finally broke down and took a muscle relaxer. I didn’t need it for my muscles though, I needed it so I could get some much needed sleep. It worked! I got 4 hours a sleep which has helped my mood wonderfully.